It is not uncommon to see patients with these tumors who have been misdiagnosed or miscategorized as having either no condition or some other medical condition.
– Dr Anthony Heaney
Diagnosing a NET can be challenging for a number of reasons1:
These factors and others can contribute to a delay in diagnosis for many patients. In fact, the estimated time to diagnosis for certain types of gastrointestinal (GI) and pancreatic NETs is up to 5 to 7 years from initial onset of symptoms.4
Currently, the estimated time to diagnosis for certain types of NETs is up to 5 to 7 years from initial onset of symptoms.4 Click on the graphic to learn more about the typical diagnostic pathway for NETs.
A key goal of The NET Alliance™, along with professional and patient groups throughout the world, is to help increase diagnosis rates and decrease diagnosis times for patients suffering with NETs.
A number of biochemical tests and imaging techniques have important roles in NET diagnosis.6 Accurate pathologic reporting is also critical for definitive diagnosis.
Learn more about the advantages, caveats, and nuances of each of these tools: